Pesquisando por: "GENETICS RESEARCH" - Fotoarena - Agência de fotojornalismo

ny060524121807 Kendric Cromer, 12, the first commercial patient for Bluebird Bio's gene therapy to cure his sickle cell disease, begins his treatment at Children's National Hospital in Washington, May 1, 2024. Wednesday?s treatment was only the first step. Doctors removed his bone marrow stem cells, which Bluebird will then genetically modify in a specialized lab for his treatment. (Kenny Holston/The New York Times/Fotoarena)

ny060524124208 A medical team tends to Kendric Cromer, 12, the first commercial patient for Bluebird Bio's gene therapy to cure his sickle cell disease, as he begins his treatment at Children's National Hospital in Washington, May 1, 2024. Wednesday?s treatment was only the first step. Doctors removed his bone marrow stem cells, which Bluebird will then genetically modify in a specialized lab for his treatment. (Kenny Holston/The New York Times/Fotoarena)

ny060524120409 Keith Cromer, whose son, Kendric Cromer, is the first commercial patient for Bluebird Bio's gene therapy to cure his sickle cell disease, at Children's National Hospital in Washington, May 1, 2024. He and his wife, Deborah, were told when she was pregnant that Kendric had a one-in-four chance of developing sickle cell disease. (Kenny Holston/The New York Times/Fotoarena)

ny060524123108 A member of the medical team inspects the blood of Kendric Cromer, 12, the first commercial patient for Bluebird Bio's gene therapy to cure his sickle cell disease, to check for blot clots as he begins his treatment at Children's National Hospital in Washington, May 1, 2024. Wednesday?s treatment was only the first step. Doctors removed his bone marrow stem cells, which Bluebird will then genetically modify in a specialized lab for his treatment. (Kenny Holston/The New York Times/Fotoarena)

ny060524122407 Kendric Cromer, 12, the first commercial patient for Bluebird Bio's gene therapy to cure his sickle cell disease, begins his treatment at Children's National Hospital in Washington, May 1, 2024. Wednesday?s treatment was only the first step. Doctors removed his bone marrow stem cells, which Bluebird will then genetically modify in a specialized lab for his treatment. (Kenny Holston/The New York Times/Fotoarena)

ny060524123607 Kendric Cromer, 12, the first commercial patient for Bluebird Bio's gene therapy to cure his sickle cell disease, begins his treatment at Children's National Hospital in Washington, May 1, 2024. Wednesday?s treatment was only the first step. Doctors removed his bone marrow stem cells, which Bluebird will then genetically modify in a specialized lab for his treatment. (Kenny Holston/The New York Times/Fotoarena)

ny060524120807 Members of the medical team study the blood of Kendric Cromer, 12, the first commercial patient for Bluebird Bio's gene therapy to cure his sickle cell disease, as he begins his treatment at Children's National Hospital in Washington, May 1, 2024. Wednesday?s treatment was only the first step. Doctors removed his bone marrow stem cells, which Bluebird will then genetically modify in a specialized lab for his treatment. (Kenny Holston/The New York Times/Fotoarena)

ny060524121407 Deborah Cromer, mother of Kendric Cromer, 12, the first commercial patient for Bluebird Bio's gene therapy to cure his sickle cell disease, at Children's National Hospital in Washington, May 1, 2024. ?We always prayed this day would come,? she said. But, she added, ?We?re nervous reading through the consents and what he will have to go through.? (Kenny Holston/The New York Times/Fotoarena)

ny111223202406 Dr. Obiageli Nnodu, director of the Centre of Excellence for Sickle Cell Disease Research and Training at the University of Abuja in Abuja, Nigeria, on Dec. 4, 2023. There is no clear path for African patients to get access to the treatments, which have multimillion-dollar price tags and are highly complex to manufacture and deliver. (Taiwo Aina/The New York Times/Fotoarena)

ny021023142306 Children jump from an abandoned boat in a bay on the coast of S?o Tom?, in the island nation of S?o Tom? and Pr?ncipe, off the coast of Africa, on July 14, 2023. A team of scientists doing research on the island think they can use genetic engineering to block a malaria-carrying species of mosquito from spreading the disease, but governments are wary. (Natalija Gormalova/The New York Times/Fotoarena)

ny021023142107 Taxis at dusk in S?o Tom?, capital of the island nation of S?o Tom? and Pr?ncipe, July 13, 2023. A team of scientists doing research on the island of Principe, which is off the coast of Africa, think they can use genetic engineering to block a malaria-carrying species of mosquito from spreading the disease. But governments are wary. (Natalija Gormalova/The New York Times/Fotoarena)

ny021023143306 Bare legs and a light are used to attract mosquitoes, which first-time collector Gecinildo Dilo, left, collects with an aspirator, on the island of Pr?ncipe, S?o Tom? and Pr?ncipe, July 12, 2023. A team of scientists doing research on the island think they can use genetic engineering to block a malaria-carrying species of mosquito from spreading the disease, but governments are wary. (Natalija Gormalova/The New York Times/Fotoarena)

ny021023144506 Fishing boats and an oceanside storage dock in Santo Antonio, capital of the island of Pr?ncipe, S?o Tom? and Pr?ncipe, July 12, 2023. A team of scientists doing research on the island think they can use genetic engineering to block a malaria-carrying species of mosquito from spreading the disease, but governments are wary. (Natalija Gormalova/The New York Times/Fotoarena)

ny021023143106 A boy climbs to collect coconuts on the island of Pr?ncipe, S?o Tom? and Pr?ncipe, July 12, 2023. A team of scientists doing research on the island off the coast of Africa think they can use genetic engineering to block a malaria-carrying species of mosquito from spreading the disease, but governments are wary. (Natalija Gormalova/The New York Times/Fotoarena)

ny021023144907 Hooks with leader lines are prepared for fishing on the island of Pr?ncipe, S?o Tom? and Pr?ncipe, July 12, 2023. A team of scientists doing research on the island think they can use genetic engineering to block a malaria-carrying species of mosquito from spreading the disease, but governments are wary. (Natalija Gormalova/The New York Times/Fotoarena)

ny021023143707 Team members with cages of mosquitoes to be released at sunset in Pr?ncipe, S?o Tom? and Pr?ncipe, July 11, 2023. A team of scientists think they can use genetic engineering to block a malaria-carrying species of mosquito from spreading the disease, but governments are wary. (Natalija Gormalova/The New York Times/Fotoarena)

ny021023142506 A female Anopheles mosquito, marked with fluorescent powder, under a microscope in a field laboratory on the island of Pr?ncipe, S?o Tom? and Pr?ncipe, July 11, 2023. A team of scientists think they can use genetic engineering to block a malaria-carrying species of mosquito from spreading the disease, but governments are wary. (Natalija Gormalova/The New York Times/Fotoarena)

ny231023065407 -- STANDALONE PHOTO FOR USE AS DESIRED WITH YEAREND REVIEWS -- Mosquitoes that were marked with fluorescent powder glow green while being examined with a microscope at a field laboratory in Pr?ncipe, S?o Tom? and Pr?ncipe, July 11, 2023. A team of scientists think they can use genetic engineering to block a malaria-carrying species of mosquito from spreading the disease, but governments are wary. (Natalija Gormalova/The New York Times/Fotoarena)

ny021023144306 Mosquitoes that were marked with fluorescent powder glow green while being examined with a microscope at a field laboratory in Pr?ncipe, S?o Tom? and Pr?ncipe, July 11, 2023. A team of scientists think they can use genetic engineering to block a malaria-carrying species of mosquito from spreading the disease, but governments are wary. (Natalija Gormalova/The New York Times/Fotoarena)

ny021023141906 Ivan Mugeni Mulongo, an insect technician with the University of California Malaria Initiative team, uses an aspirator to sample mosquitoes on the island of Pr?ncipe, S?o Tom? and Pr?ncipe, July 11, 2023. A team of scientists think they can use genetic engineering to block a malaria-carrying species of mosquito from spreading the disease, but governments are wary. (Natalija Gormalova/The New York Times/Fotoarena)

ny021023144707 Scientist Anton Cornel marks mosquitoes with a fluorescent powder to aid in tracking them ahead of their release at sunset in Pr?ncipe, S?o Tom? and Pr?ncipe, July 11, 2023. A team of scientists think they can use genetic engineering to block a malaria-carrying species of mosquito from spreading the disease, but governments are wary. (Natalija Gormalova/The New York Times/Fotoarena)

ny021023142906 Team leader Gregory Lanzaro, a molecular geneticist at the University of California, Davis, and others with cages for mosquitoes used in their research, on the island of Pr?ncipe, S?o Tom? and Pr?ncipe, July 11, 2023. A team of scientists think they can use genetic engineering to block a malaria-carrying species of mosquito from spreading the disease, but governments are wary. (Natalija Gormalova/The New York Times/Fotoarena)

ny021023143906 Ivan Mugeni Mulongo, an insect technician for the University of California Malaria Initiative, brings the mosquito cage outside to be marked with fluorescent powder before the release at sunset in Pr?ncipe, S?o Tom? and Pr?ncipe, July 11, 2023. A team of scientists think they can use genetic engineering to block a malaria-carrying species of mosquito from spreading the disease, but governments are wary. (Natalija Gormalova/The New York Times/Fotoarena)

ny021023143506 Scientist Anton Cornel looks for mosquito larvae in a shallow puddle on the island of Pr?ncipe, S?o Tom? and Pr?ncipe, July 11, 2023. A team of scientists think they can use genetic engineering to block a malaria-carrying species of mosquito from spreading the disease, but governments are wary. (Natalija Gormalova/The New York Times/Fotoarena)

ny021023144106 Lush plant life and mountains on the island of Pr?ncipe, S?o Tom? and Pr?ncipe, July 11, 2023. A team of scientists doing research on the island off the coast of Africa think they can use genetic engineering to block a malaria-carrying species of mosquito from spreading the disease, but governments are wary. (Natalija Gormalova/The New York Times/Fotoarena)

ny021023145206 Scientist Anton Cornel, left, explains the steps for capturing mosquitoes to a volunteer collector on the island of Pr?ncipe, S?o Tom? and Pr?ncipe, July 11, 2023. A team of scientists think they can use genetic engineering to block a malaria-carrying species of mosquito from spreading the disease, but governments are wary. (Natalija Gormalova/The New York Times/Fotoarena)

ny021023142707 Technician Janete Marbel places water dishes for egg collection in cages of mosquitoes at the University of S?o Tom? and Pr?ncipe, in the island nation of the same name off the coast of Africa, July 10, 2023. A team of scientists think they can use genetic engineering to block a malaria-carrying species of mosquito from spreading the disease, but governments are wary. (Natalija Gormalova/The New York Times/Fotoarena)

ny021023145106 Technician Janete Marbel uses her phoneÕs light to inspect dead mosquitoes in a lab at the University of S?o Tom? and Pr?ncipe, in the island nation of the same name off the coast of Africa, July 10, 2023. A team of scientists think they can use genetic engineering to block a malaria-carrying species of mosquito from spreading the disease, but governments are wary. (Natalija Gormalova/The New York Times/Fotoarena)

ny290523220808 **EMBARGO: No electronic distribution, Web posting or street sales before TUESDAY 3:01 A.M. ET MAY 30, 2023. No exceptions for any reasons. EMBARGO set by source.** Katie Elkins, whose doctor recommended she get a new kind of genetic test to better assess her risk of a heart attack, in Philadelphia, May 25, 2023. Polygenic risk scores could help patients understand whether they really need early treatment for heart disease. (Hannah Price/The New York Times/Fotoarena)

ny220523223206 -- EMBARGO: NO ELECTRONIC DISTRIBUTION, WEB POSTING OR STREET SALES BEFORE 3:01 A.M. ET ON TUESDAY, MAY 23, 2023. NO EXCEPTIONS FOR ANY REASONS -- Jose Echevarria?s chair, damaged by years of his involuntary movement from Huntington?s disease, a hereditary, progressive neurodegenerative illness caused by a genetic mutation, at the home he shares with his mother and sister, in Piojo, Colombia, May 8, 2023. Years ago, researchers contacted ailing families in Colombia for insights into the disease, but they are just now following up. (Charlie Cordero/The New York Times/Fotoarena)

ny220523224306 -- EMBARGO: NO ELECTRONIC DISTRIBUTION, WEB POSTING OR STREET SALES BEFORE 3:01 A.M. ET ON TUESDAY, MAY 23, 2023. NO EXCEPTIONS FOR ANY REASONS -- Jose Echevarria, who has Huntington?s disease, a hereditary, progressive neurodegenerative illness caused by a genetic mutation, at the home he shares with his mother and sister in Piojo, Colombia, May 8, 2023. Years ago, researchers contacted ailing families in Colombia for insights into the disease, but they are just now following up. (Charlie Cordero/The New York Times/Fotoarena)

ny220523223005 -- EMBARGO: NO ELECTRONIC DISTRIBUTION, WEB POSTING OR STREET SALES BEFORE 3:01 A.M. ET ON TUESDAY, MAY 23, 2023. NO EXCEPTIONS FOR ANY REASONS -- Julieta Echeverria, who cared for her uncle Nelson Echeverria through the end stages of Huntington?s disease, in Saco, Colombia, May 8, 2023. Years ago, researchers contacted ailing families in Colombia for insights into the disease, but they are just now following up. (Charlie Cordero/The New York Times/Fotoarena)

ny220523224006 -- EMBARGO: NO ELECTRONIC DISTRIBUTION, WEB POSTING OR STREET SALES BEFORE 3:01 A.M. ET ON TUESDAY, MAY 23, 2023. NO EXCEPTIONS FOR ANY REASONS -- Maripaz Ariza, who has become more childlike as her symptoms of Huntington?s disease, have progressed, in Puerto Colombia, Colombia, May 8, 2023. Years ago, researchers contacted ailing families in Colombia for insights into the disease, but they are just now following up. (Charlie Cordero/The New York Times/Fotoarena)

ny220523224206 -- EMBARGO: NO ELECTRONIC DISTRIBUTION, WEB POSTING OR STREET SALES BEFORE 3:01 A.M. ET ON TUESDAY, MAY 23, 2023. NO EXCEPTIONS FOR ANY REASONS -- Maripaz Ariza, who has become more childlike as her symptoms of Huntington?s disease, have progressed, holds up a family photo of her and her sister Gepsy as children, in Puerto Colombia, Colombia, May 8, 2023. Years ago, researchers contacted ailing families in Colombia for insights into the disease, but they are just now following up. (Charlie Cordero/The New York Times/Fotoarena)

ny220523223306 -- EMBARGO: NO ELECTRONIC DISTRIBUTION, WEB POSTING OR STREET SALES BEFORE 3:01 A.M. ET ON TUESDAY, MAY 23, 2023. NO EXCEPTIONS FOR ANY REASONS -- Maripaz Ariza, whose symptoms of Huntington?s, a hereditary neurodegenerative disease, emerged seven years ago, when she was pregnant with her daughter, at home in the town of Puerto Colombia, Colombia, May 8, 2023. Years ago, researchers contacted ailing families in Colombia for insights into the disease, but they are just now following up. (Charlie Cordero/The New York Times/Fotoarena)

ny140323232405 Dr. Marlena Fejzo, a faculty researcher in the department of obstetrics and gynecology at the University of Southern California Keck School of Medicine, at one of her labs in Los Angeles on March 3, 2023. After enduring severe nausea and vomiting in pregnancy, Fejzo made finding the cause of her condition, hyperemesis gravidarum, her life?s work. (Maggie Shannon/The New York Times/Fotoarena)

ny140323233206 Dr. Marlena Fejzo, a faculty researcher in the department of obstetrics and gynecology at the University of Southern California Keck School of Medicine, at one of her labs in Los Angeles on March 3, 2023. After enduring severe nausea and vomiting in pregnancy, Fejzo made finding the cause of her condition, hyperemesis gravidarum, her life?s work. (Maggie Shannon/The New York Times/Fotoarena)

ny140323232906 A styrofoam box used in Dr. Marlena Fejzo?s research on hyperemesis gravidarum, a pregnancy condition marked by nausea and vomiting so severe it can cause catastrophic complications for mother and fetus, in a lab at the University of Southern California Keck School of Medicine, in Los Angeles on March 3, 2023. After enduring severe nausea and vomiting in pregnancy, Fejzo made finding the cause of her condition, hyperemesis gravidarum, her life?s work. (Maggie Shannon/The New York Times/Fotoarena)

ny140323232705 Dr. Marlena Fejzo, a faculty researcher in the department of obstetrics and gynecology at the University of Southern California Keck School of Medicine, works at one of her labs in Los Angeles on March 3, 2023. After enduring severe nausea and vomiting in pregnancy, Fejzo made finding the cause of her condition, hyperemesis gravidarum, her life?s work. (Maggie Shannon/The New York Times/Fotoarena)

ny130323195405 Ñ EMBARGO: NO ELECTRONIC DISTRIBUTION, WEB POSTING OR STREET SALES BEFORE 3:01 A.M. ET ON TUESDAY, MARCH 14, 2023. NO EXCEPTIONS FOR ANY REASONS Ñ Florence Leblanc, one of the owners of the DonkeyÕs Apiary, is nuzzled by one of the farmÕs residents, in Toulouse, France, March 3, 2023. In a new study, genetics and archaeology combine to reveal the ancient origins of humanityÕs first beast of burden. (Samuel Aranda/The New York Times/Fotoarena)

ny130323193905 Ñ EMBARGO: NO ELECTRONIC DISTRIBUTION, WEB POSTING OR STREET SALES BEFORE 3:01 A.M. ET ON TUESDAY, MARCH 14, 2023. NO EXCEPTIONS FOR ANY REASONS Ñ A donkey named Pantin at a farm known as the DonkeyÕs Apiary, in Toulouse, France, March 3, 2023. In a new study, genetics and archaeology combine to reveal the ancient origins of humanityÕs first beast of burden. (Samuel Aranda/The New York Times/Fotoarena)

ny130323194805 Ñ EMBARGO: NO ELECTRONIC DISTRIBUTION, WEB POSTING OR STREET SALES BEFORE 3:01 A.M. ET ON TUESDAY, MARCH 14, 2023. NO EXCEPTIONS FOR ANY REASONS Ñ Residents of the DonkeyÕs Apiary, in Toulouse, France, March 3, 2023. In a new study, genetics and archaeology combine to reveal the ancient origins of humanityÕs first beast of burden. (Samuel Aranda/The New York Times/Fotoarena)

ny130323195805 Ñ EMBARGO: NO ELECTRONIC DISTRIBUTION, WEB POSTING OR STREET SALES BEFORE 3:01 A.M. ET ON TUESDAY, MARCH 14, 2023. NO EXCEPTIONS FOR ANY REASONS Ñ Ludovic Orlando, director of the Center for Anthropobiology and Genomics of Toulouse, in France, March 2, 2023. Orlando and researchers from 37 laboratories around the world analyzed the genomes of 207 modern donkeys, living in 31 countries, and also sequenced DNA from the skeletons of 31 early donkeys that date as far back as 4,500 years. (Samuel Aranda/The New York Times/Fotoarena)

ny130323195606 Ñ EMBARGO: NO ELECTRONIC DISTRIBUTION, WEB POSTING OR STREET SALES BEFORE 3:01 A.M. ET ON TUESDAY, MARCH 14, 2023. NO EXCEPTIONS FOR ANY REASONS Ñ A researcher on the team Dr. Ludovic Orlando, director of the Center for Anthropobiology and Genomics, works with DNA samples at the Universit? Paul Sabatier, in Toulouse, France, March 2, 2023. In a new study, genetics and archaeology combine to reveal the ancient origins of humanityÕs first beast of burden. (Samuel Aranda/The New York Times/Fotoarena)

ny130323195006 Ñ EMBARGO: NO ELECTRONIC DISTRIBUTION, WEB POSTING OR STREET SALES BEFORE 3:01 A.M. ET ON TUESDAY, MARCH 14, 2023. NO EXCEPTIONS FOR ANY REASONS Ñ Ludovic Orlando, director of the Center for Anthropobiology and Genomics of Toulouse, in a lab where his team works with DNA samples at the Universit? Paul Sabatier, in Toulouse, France, March 2, 2023. Orlando and researchers from 37 laboratories around the world analyzed the genomes of 207 modern donkeys, living in 31 countries, and also sequenced DNA from the skeletons of 31 early donkeys that date as far back as 4,500 years. (Samuel Aranda/The New York Times/Fotoarena)

ny130323194606 Ñ EMBARGO: NO ELECTRONIC DISTRIBUTION, WEB POSTING OR STREET SALES BEFORE 3:01 A.M. ET ON TUESDAY, MARCH 14, 2023. NO EXCEPTIONS FOR ANY REASONS Ñ A donkey jaw at the Museum of Toulouse in France, March 2, 2023. In a new study, genetics and archaeology combine to reveal the ancient origins of humanityÕs first beast of burden. (Samuel Aranda/The New York Times/Fotoarena)

ny130323194406 Ñ EMBARGO: NO ELECTRONIC DISTRIBUTION, WEB POSTING OR STREET SALES BEFORE 3:01 A.M. ET ON TUESDAY, MARCH 14, 2023. NO EXCEPTIONS FOR ANY REASONS Ñ A human and horse skeleton at the Museum of Toulouse in France, March 2, 2023. Local scientist Ludovic Orlando, who has spent years mapping the domestication history of horses, is one of the authors of a major new genetic study that he hopes will jump-start research on the humble donkey and restore some of its dignity. (Samuel Aranda/The New York Times/Fotoarena)

ny241022125905 August Rocha, who has a rare genetic disorder called Bechet's disease, outside his apartment in Milwaukee, on Oct. 8, 2022. Rocha said he hesitates to complain and he worries that the doctor might spread the word that he is a difficult patient. (Kevin Miyazaki/The New York Times/Fotoarena)

ny191022232006 August Rocha, who has a rare genetic disorder called Bechet's disease, outside his apartment in Milwaukee, on Oct. 8, 2022. Rocha said he hesitates to complain and he worries that the doctor might spread the word that he is a difficult patient. (Kevin Miyazaki/The New York Times/Fotoarena)

ny220523222906 -- EMBARGO: NO ELECTRONIC DISTRIBUTION, WEB POSTING OR STREET SALES BEFORE 3:01 A.M. ET ON TUESDAY, MAY 23, 2023. NO EXCEPTIONS FOR ANY REASONS -- Maria Jose combs the hair of her mother, Nohora Esther Echevarria, who has milder symptoms of Huntington?s disease than her brother, Jose, in Piojo, Colombia, May 8, 2023. Years ago, researchers contacted ailing families in Colombia for insights into the disease, but they are just now following up. (Charlie Cordero/The New York Times/Fotoarena)

ny101122182006 Ayla Bashir, who was treated while in utero for Pompe disease, in the gardens at the Children's Hospital of Eastern Ontario in Ottawa, Sept. 8, 2022. Pompe disease is a genetic disorder that could be fatal within the first year of life and killed two of her sisters. (Jessica Deeks/The New York Times/Fotoarena)

ny091122193006 Ayla Bashir, who was treated while in utero for Pompe disease, in the gardens at the Children's Hospital of Eastern Ontario in Ottawa, Sept. 8, 2022. Pompe disease is a genetic disorder that could be fatal within the first year of life and killed two of her sisters. (Jessica Deeks/The New York Times/Fotoarena)

ny101122173806 EDS.: RETRANSMISSION TO CORECT CHILDÕS FIRST NAME FROM ALYA TO AYLA Ñ From left: Sobia Qureshi, Ayla and Zahid Bashir at the Children's Hospital of Eastern Ontario in Ottawa, Sept. 8, 2022. Ayla was treated while in utero for Pompe disease, a genetic disorder that could be fatal within the first year of life and killed two of her sisters. (Jessica Deeks/The New York Times/Fotoarena)

ny091122192306 From left: Sobia Qureshi, Alya and Zahid Bashir at the Children's Hospital of Eastern Ontario in Ottawa, Sept. 8, 2022. Alya was treated while in utero for Pompe disease, a genetic disorder that could be fatal within the first year of life and killed two of her sisters. (Jessica Deeks/The New York Times/Fotoarena)

ny101122173706 EDS.: RETRANSMISSION TO CORECT CHILDÕS FIRST NAME FROM ALYA TO AYLA Ñ From left: Sobia Qureshi, Ayla and Zahid Bashir at the Children's Hospital of Eastern Ontario in Ottawa, Sept. 8, 2022. Ayla was treated while in utero for Pompe disease, a genetic disorder that could be fatal within the first year of life and killed two of her sisters. (Jessica Deeks/The New York Times/Fotoarena)

ny091122192407 From left: Sobia Qureshi, Alya and Zahid Bashir at the Children's Hospital of Eastern Ontario in Ottawa, Sept. 8, 2022. Alya was treated while in utero for Pompe disease, a genetic disorder that could be fatal within the first year of life and killed two of her sisters. (Jessica Deeks/The New York Times/Fotoarena)

ny091122193306 Dr. Pranesh Chakraborty, a pediatrician at the Children's Hospital of Eastern Ontario and a specialist in inherited metabolic disorders, in Ottawa, Sept. 8, 2022. Two sisters in one family died from a genetic disorder. Before a third child with the disease was born, doctors hatched a plan to spare her of its effects. (Jessica Deeks/The New York Times/Fotoarena)

ny091122192706 Dr. Karen Fung-Kee-Fung, a maternal-fetal medicine specialist professor of obstetrics and gynecology at the Ottawa Hospital and Sobia Qureshi's doctor, in Ottawa, Canada, Sept. 8, 2022. Two sisters in one family died from a genetic disorder. Before a third child with the disease was born, doctors hatched a plan to spare her of its effects. (Jessica Deeks/The New York Times/Fotoarena)

ny220523224406 -- EMBARGO: NO ELECTRONIC DISTRIBUTION, WEB POSTING OR STREET SALES BEFORE 3:01 A.M. ET ON TUESDAY, MAY 23, 2023. NO EXCEPTIONS FOR ANY REASONS -- Juan de Acosta?s cemetery, the final resting place for generations of Huntington?s patients on Colombia?s Caribbean coast, May 8, 2023. Years ago, researchers contacted ailing families in Colombia for insights into the disease, but they are just now following up. (Charlie Cordero/The New York Times/Fotoarena)

ny120822132006 Wilbert Gibson in Brooklyn on Aug. 11, 2022. Gibson is a Mount Sinai Health System patient who agreed to let the hospital use his genetic information in research for treatment of a variety of diseases. (Hiroko Masuike/The New York Times/Fotoarena)

ny220523224605 -- EMBARGO: NO ELECTRONIC DISTRIBUTION, WEB POSTING OR STREET SALES BEFORE 3:01 A.M. ET ON TUESDAY, MAY 23, 2023. NO EXCEPTIONS FOR ANY REASONS -- The funeral of Nelson Echeverria, who had Huntington?s disease, led by his niece Julieta Echeverria, center, at the cemetery in Juan de Acosta, Colombia, June 27, 2022. Years ago, researchers contacted ailing families in Colombia for insights into the disease, but they are just now following up. (Charlie Cordero/The New York Times/Fotoarena)

ny220523223506 -- EMBARGO: NO ELECTRONIC DISTRIBUTION, WEB POSTING OR STREET SALES BEFORE 3:01 A.M. ET ON TUESDAY, MAY 23, 2023. NO EXCEPTIONS FOR ANY REASONS -- Julieta Echeverria?s uncle Nelson Echeverria, who had Huntington?s disease, during a hospitalization a few weeks before he died, in Juan de Acosta, Colombia, June 11, 2022. Years ago, researchers contacted ailing families in Colombia for insights into the disease, but they are just now following up. (Charlie Cordero/The New York Times/Fotoarena)

ny220523223905 -- EMBARGO: NO ELECTRONIC DISTRIBUTION, WEB POSTING OR STREET SALES BEFORE 3:01 A.M. ET ON TUESDAY, MAY 23, 2023. NO EXCEPTIONS FOR ANY REASONS -- Capsules of valproic acid used to treat the behavioral symptoms from Huntington?s disease, in Juan de Acosta, Colombia, May 8, 2023. Years ago, researchers contacted ailing families in Colombia for insights into the disease, but they are just now following up. (Charlie Cordero/The New York Times/Fotoarena)

ny220523223706 -- EMBARGO: NO ELECTRONIC DISTRIBUTION, WEB POSTING OR STREET SALES BEFORE 3:01 A.M. ET ON TUESDAY, MAY 23, 2023. NO EXCEPTIONS FOR ANY REASONS -- Mari Echeverria, who grew up caring for her mother who had Huntington?s disease, with her daughter Osmary, in Juan de Acosta, Colombia, May 8, 2023. Years ago, researchers contacted ailing families in Colombia for insights into the disease, but they are just now following up. (Charlie Cordero/The New York Times/Fotoarena)

ny290923174307 FILE Ñ A researcher at a lab Philadelphia on Dec. 23, 2021. Genetic testing that reveals potential cancer risks or other maladies with no regulatory oversight is among the targets of the Food and Drug AdministrationÕs proposed review. (Kriston Jae Bethel/The New York Times/Fotoarena)

ny220523223606 -- EMBARGO: NO ELECTRONIC DISTRIBUTION, WEB POSTING OR STREET SALES BEFORE 3:01 A.M. ET ON TUESDAY, MAY 23, 2023. NO EXCEPTIONS FOR ANY REASONS -- A 54th birthday celebration for Maria Orladys Echeverria, a Huntington?s patient, just months before her death, in Juan de Acosta, Colombia, Nov. 4, 2021. Years ago, researchers contacted ailing families in Colombia for insights into the disease, but they are just now following up. (Charlie Cordero/The New York Times/Fotoarena)

ny160821184104 **EMBARGO: No electronic distribution, Web posting or street sales before 3:01 a.m. ET Tuesday, Aug. 17, 2021. No exceptions for any reasons. EMBARGO set by source.** Susan Karnick, who opted for a prophylactic mastectomy when she tested positive for the PALB2 gene, in Crystal Lake, Ill., Aug. 9, 2021. After surgery, it was found she had stage one breast cancer in one breast and five precancerous lesions in the other, despite routine scans. (Taylor Glascock/The New York Times/Fotoarena)

ny300821191605 **EMBARGO: No electronic distribution, Web posting or street sales before TUESDAY 3:01 A.M. ET AUG. 31, 2021. No exceptions for any reasons. EMBARGO set by source.** A many-banded aracari, a type of toucan, near Florencia, Colombia, Aug. 9, 2021. A century after museum collectors surveyed ColumbiaÕs avian fauna, a new generation of researchers returns to see what remains, and what has changed. (Federico Rios/The New York Times/Fotoarena)

ny300821192504 **EMBARGO: No electronic distribution, Web posting or street sales before TUESDAY 3:01 A.M. ET AUG. 31, 2021. No exceptions for any reasons. EMBARGO set by source.** A bird is capture in a mist net Ñ a loose, wispy net that causes birds to become trapped in its pockets Ñ near Florencia, Colombia, Aug. 9, 2021. A century after museum collectors surveyed ColumbiaÕs avian fauna, a new generation of researchers returns to see what remains, and what has changed. (Federico Rios/The New York Times/Fotoarena)

ny300821193105 **EMBARGO: No electronic distribution, Web posting or street sales before TUESDAY 3:01 A.M. ET AUG. 31, 2021. No exceptions for any reasons. EMBARGO set by source.** Gerlando Delgado, a biology student at the Universidad de la Amazonia in Caquet?, with a black-banded woodcreeper near Florencia, Colombia, Aug. 8, 2021. A century after museum collectors surveyed ColumbiaÕs avian fauna, a new generation of researchers returns to see what remains, and what has changed. (Federico Rios/The New York Times/Fotoarena)

ny300821190905 **EMBARGO: No electronic distribution, Web posting or street sales before TUESDAY 3:01 A.M. ET AUG. 31, 2021. No exceptions for any reasons. EMBARGO set by source.** Nelsy Ni?o of ColombiaÕs Instituto Humboldt holds a pair of LafresnayeÕs piculets, tiny tropical woodpeckers, near Florencia, Colombia, Aug. 8, 2021. A century after museum collectors surveyed ColumbiaÕs avian fauna, a new generation of researchers returns to see what remains, and what has changed. (Federico Rios/The New York Times/Fotoarena)

ny300821194104 **EMBARGO: No electronic distribution, Web posting or street sales before TUESDAY 3:01 A.M. ET AUG. 31, 2021. No exceptions for any reasons. EMBARGO set by source.** A LafresnayeÕs piculet near Florencia, Colombia, Aug. 8, 2021. A century after museum collectors surveyed ColumbiaÕs avian fauna, a new generation of researchers returns to see what remains, and what has changed. (Federico Rios/The New York Times/Fotoarena)

ny300821193005 **EMBARGO: No electronic distribution, Web posting or street sales before TUESDAY 3:01 A.M. ET AUG. 31, 2021. No exceptions for any reasons. EMBARGO set by source.** A female chestnut woodpecker near Florencia, Colombia, Aug. 8, 2021. A century after museum collectors surveyed ColumbiaÕs avian fauna, a new generation of researchers returns to see what remains, and what has changed. (Federico Rios/The New York Times/Fotoarena)

ny300821192804 **EMBARGO: No electronic distribution, Web posting or street sales before TUESDAY 3:01 A.M. ET AUG. 31, 2021. No exceptions for any reasons. EMBARGO set by source.** A juvenile male silver-beaked tanager, locally known as the come-queso, or cheese-eater, near Florencia, Colombia, Aug. 8, 2021. A century after museum collectors surveyed ColumbiaÕs avian fauna, a new generation of researchers returns to see what remains, and what has changed. (Federico Rios/The New York Times/Fotoarena)

ny300821192705 **EMBARGO: No electronic distribution, Web posting or street sales before TUESDAY 3:01 A.M. ET AUG. 31, 2021. No exceptions for any reasons. EMBARGO set by source.** A white-bearded manakin near Florencia, Colombia, Aug. 7, 2021. A century after museum collectors surveyed ColumbiaÕs avian fauna, a new generation of researchers returns to see what remains, and what has changed. (Federico Rios/The New York Times/Fotoarena)

ny300821192305 **EMBARGO: No electronic distribution, Web posting or street sales before TUESDAY 3:01 A.M. ET AUG. 31, 2021. No exceptions for any reasons. EMBARGO set by source.** A gray-crowned flycatcher near Florencia, Colombia, Aug. 7, 2021. A century after museum collectors surveyed ColumbiaÕs avian fauna, a new generation of researchers returns to see what remains, and what has changed. (Federico Rios/The New York Times/Fotoarena)

ny160821184705 **EMBARGO: No electronic distribution, Web posting or street sales before 3:01 a.m. ET Tuesday, Aug. 17, 2021. No exceptions for any reasons. EMBARGO set by source.** Heidi Marsh with a genealogy chart to track the PALB2 mutation for Dr. Marc Tischkowitz, a geneticist at the University of Cambridge and creator of the PALB2 Interest Group, who is conducting a study on the mutation, in Mulkiteo, Wash., Aug. 3, 2021. Marsh tested positive for the PALB2 mutation after her mother, a breast cancer and pancreatic cancer patient, was found to have it. She said her own doctor was unaware of the gene. (Jovelle Tamayo/The New York Times/Fotoarena)

ny160821184405 **EMBARGO: No electronic distribution, Web posting or street sales before 3:01 a.m. ET Tuesday, Aug. 17, 2021. No exceptions for any reasons. EMBARGO set by source.** Heidi Marsh in Mulkiteo, Wash., Aug. 3, 2021. Marsh tested positive for the PALB2 mutation after her mother, a breast cancer and pancreatic cancer patient, was found to have it. She said her own doctor was unaware of the gene. (Jovelle Tamayo/The New York Times/Fotoarena)

ny280621204304 **EMBARGO: No electronic distribution, Web posting or street sales before 2:31 a.m. ET TUESDAY, JUNE 29, 2021. No exceptions for any reasons. EMBARGO set by source.** Krystal Tsosie, a genetics researcher at Vanderbilt University and a member of the Navajo Nation, at Arizona State University in Tempe, Ariz. on June 23, 2021. A new workshop explores the right of Indigenous people to govern the collection, ownership and use of their biological and cultural data. (Tomás Karmelo Amaya/The New York Times/Fotoarena)

ny280621203905 **EMBARGO: No electronic distribution, Web posting or street sales before 2:31 a.m. ET TUESDAY, JUNE 29, 2021. No exceptions for any reasons. EMBARGO set by source.** Krystal Tsosie, a genetics researcher at Vanderbilt University and a member of the Navajo Nation, at Arizona State University in Tempe, Ariz. on June 23, 2021. Tsosie helped to organize IndigiData, a four-day remote workshop that took place for the first time in June. (Tomás Karmelo Amaya/The New York Times/Fotoarena)

ny280621204505 **EMBARGO: No electronic distribution, Web posting or street sales before 2:31 a.m. ET TUESDAY, JUNE 29, 2021. No exceptions for any reasons. EMBARGO set by source.** Krystal Tsosie, a genetics researcher at Vanderbilt University and a member of the Navajo Nation, at Arizona State University in Tempe, Ariz. on June 23, 2021. Tsosie helped to organize IndigiData, a four-day remote workshop that took place for the first time in June. (Tomás Karmelo Amaya/The New York Times/Fotoarena)

ny280621204204 **EMBARGO: No electronic distribution, Web posting or street sales before 2:31 a.m. ET TUESDAY, JUNE 29, 2021. No exceptions for any reasons. EMBARGO set by source.** Krystal Tsosie, a genetics researcher at Vanderbilt University and a member of the Navajo Nation, in Tempe, Ariz. on June 23, 2021. Tsosie started her career in cancer biology but is now a graduate student in genomics and health disparities. (Tomás Karmelo Amaya/The New York Times/Fotoarena)

ny280621203704 **EMBARGO: No electronic distribution, Web posting or street sales before 2:31 a.m. ET TUESDAY, JUNE 29, 2021. No exceptions for any reasons. EMBARGO set by source.** Mason Grimshaw, a data scientist and a board member of Indigenous in A.I., in Rapid City, S.D. on June 22, 2021. A new workshop explores the right of Indigenous people to govern the collection, ownership and use of their biological and cultural data. (Dawnee LeBeau/The New York Times/Fotoarena)

ny030521160405 L. Elias Chan, a volunteer with the DNA Doe Project who runs a genealogy research business, in Seattle on April 27, 2021. Forensic genealogy helped nab the Golden State Killer in 2018 and now investigators across the country are using it to revisit hundreds of unsolved crimes. (Jovelle Tamayo/The New York Times/Fotoarena)

ny150221231905 **EMBARGO: No electronic distribution, Web posting or street sales before 2:31 a.m. ET TUESDAY, FEB. 16, 2021. No exceptions for any reasons. EMBARGO set by source.** Dr. Jessica Manning, a public health researcher with the National Institute of Allergy and Infectious Diseases, at the National Center for Parasitology, Entomology and Malaria Control in Phnom Penh, Cambodia on Feb. 10, 2021. From a small lab in Cambodia, Dr. Jessica Manning is on the lookout for emerging diseases. (Thomas Cristofoletti/The New York Times/Fotoarena)

ny150221231105 **EMBARGO: No electronic distribution, Web posting or street sales before 2:31 a.m. ET TUESDAY, FEB. 16, 2021. No exceptions for any reasons. EMBARGO set by source.** Dr. Jessica Manning, a public health researcher with the National Institute of Allergy and Infectious Diseases, at the National Center for Parasitology, Entomology and Malaria Control in Phnom Penh, Cambodia on Feb. 10, 2021. From a small lab in Cambodia, Dr. Jessica Manning is on the lookout for emerging diseases. (Thomas Cristofoletti/The New York Times/Fotoarena)

ny150221232805 **EMBARGO: No electronic distribution, Web posting or street sales before 2:31 a.m. ET TUESDAY, FEB. 16, 2021. No exceptions for any reasons. EMBARGO set by source.** Dr. Jessica Manning, a public health researcher with the National Institute of Allergy and Infectious Diseases, at the National Center for Parasitology, Entomology and Malaria Control in Phnom Penh, Cambodia on Feb. 10, 2021. From a small lab in Cambodia, Dr. Jessica Manning is on the lookout for emerging diseases. (Thomas Cristofoletti/The New York Times/Fotoarena)

ny140221180505 FILE-- Coronavirus samples for genomic sequencing being unpacked in the Bonsignori Lab of Duke University in Durham, N.C., Feb. 3, 2021. A team of researchers reported in a new study seven growing lineages of the novel coronavirus, spotted in states across the country. All of them have evolved a mutation in the same genetic letter. (Pete Kiehart/The New York Times/Fotoarena)

ny050221170104 Coronavirus samples for genomic sequencing being unpacked in the Bonsignori Lab of Duke University in Durham, N.C., Feb. 3, 2021. New studies underscore how coronaviruses frequently mix their genetic components - which could contribute to the rise of dangerous variants. (Pete Kiehart/The New York Times/Fotoarena)

ny021221183905 FILE Ñ Researchers sort coronavirus test samples for genetic sequencing at Duke University in Durham, N.C., Feb. 3, 2021. Even after the CDC launched a consortium to track COVID samples in May 2020, genetic sequencing efforts were stymied by a fragmented health care system, a lack of funding and other challenges. (Pete Kiehart/The New York Times/Fotoarena)

ny050221170305 Nicolas Devos arrives with a fresh batch of coronavirus samples at the Sequencing and Genomic Technologies Shared Resource at Duke University in Durham, N.C., on February 3, 2021. New studies underscore how coronaviruses frequently mix their genetic components - which could contribute to the rise of dangerous variants. (Pete Kiehart/The New York Times/Fotoarena)

ny160121130905 Professor Sharon Peacock, Executive Director and Chair of the COVID-19 Genomics UK consortium (COG), at her home in Cambridge, England on Jan. 14, 2021. Back in March, researchers decided to record the genetic sequencing of the coronavirus in positive tests nationwide, giving them a powerful tool. (Mary Turner/The New York Times/Fotoarena)

ny160121130105 Dr. Ravindra Gupta, left, and Dr. Steven Kemp in the research laboratories at the Jeffrey Cheah Biomedical Centre, in Cambridge, England on Jan. 14, 2021. Back in March, researchers decided to record the genetic sequencing of the coronavirus in positive tests nationwide, giving them a powerful tool. (Mary Turner/The New York Times/Fotoarena)

ny160121131304 Dr. Ravindra Gupta, left, and his Dr. Bo Meng in a research laboratory looking at samples of the coronavirus that their team have been analyzing, at the Jeffrey Cheah Biomedical Centre in Cambridge, England on Jan. 14 2021. Back in March, researchers decided to record the genetic sequencing of the coronavirus in positive tests nationwide, giving them a powerful tool. (Mary Turner/The New York Times/Fotoarena)

ny160121131204 A scientist takes samples of the coronavirus in the research laboratories at the Jeffrey Cheah Biomedical Centre in Cambridge, England, on Jan. 14 2021. Back in March, researchers decided to record the genetic sequencing of the coronavirus in positive tests nationwide, giving them a powerful tool. (Mary Turner/The New York Times/Fotoarena)

ny160121130705 The Wellcome Sanger Institute, a genomics lab outside Cambridge, England, on Jan. 13, 2021, where coronavirus samples are stored and analyzed. Back in March, researchers decided to record the genetic sequencing of the coronavirus in positive tests nationwide, giving them a powerful tool. (Mary Turner/The New York Times/Fotoarena)

ny130921211505 **EMBARGO: No electronic distribution, Web posting or street sales before 3:01 a.m. ET TUESDAY, SEPT. 13, 2021. No exceptions for any reasons. EMBARGO set by source.** Helen Obando, 18, with a certificate commemorating her gene therapy in Mesa, Ariz. on Dec. 19, 2020. Now that she now longer has sickle cell she says she almost never thinks back to those terrible years of illness. (Ash Ponders/The New York Times/Fotoarena)

ny130921211405 **EMBARGO: No electronic distribution, Web posting or street sales before 3:01 a.m. ET TUESDAY, SEPT. 13, 2021. No exceptions for any reasons. EMBARGO set by source.** Helen Obando, outside her home in Mesa, Ariz. on Dec. 19, 2020. An experimental gene therapy Obando received last year successfully rid her of her sickle cell disease, eliminating her intense suffering and transforming her into a teenager like any other. (Ash Ponders/The New York Times/Fotoarena)

ny121220201904 Rocío Villegas-Piedrahita, whose mother Aliria Rosa Piedrahita de Villegas died in November at age 77, in Medellín, Colombia, Dec. 11, 2020. Aliria carried a rare but well-known genetic mutation, unique to Colombia, that all but guaranteed she would develop Alzheimer?s disease in her 40s, but only at age 72 did she experience the first symptoms. A study of her brain and her family may help unlock the secrets of early-onset Alzheimer?s. (Federico Rios Escobar/The New York Times/Fotoarena)

ny121220201704 Rocío Villegas-Piedrahita, left, and Magaly Villegas-Piedrahita with a portrait of their mother, Aliria Rosa Piedrahita de Villegas, who died in November at age 77, in Medellín, Colombia, Dec. 11, 2020. Aliria carried a rare but well-known genetic mutation, unique to Colombia, that all but guaranteed she would develop Alzheimer?s disease in her 40s, but only at age 72 did she experience the first symptoms. A study of her brain and her family may help unlock the secrets of early-onset Alzheimer?s. (Federico Rios Escobar/The New York Times/Fotoarena)